... a mother, writing about adventures in assisting and advocating for her young adult son who has special needs,
invites you to come along for the ride.




Showing posts with label UCP. Show all posts
Showing posts with label UCP. Show all posts

Tuesday, August 18

Tuesday's To Do List...

Today is a day in which I need to get lots of things done. That sometimes seems true for everyday at our house, but for some reason especially today. I'm tempted to just write about those things which could be identified as tasks related to the special needs in the family, but the truth is - I have those tasks plus all the regular or normal or "typical" things to get done as well.

Admitting that my "to do" list is considerably shorter than those parents who are also working in "paying jobs", here it is:

  • assist young adult son in getting ready for and physically getting to his day program at UCP LINCPoint - he cannot do either without me
  • order refills for the prescription drugs that give my son (and myself) a better life
  • call the case worker assigned to my adult son's services through the state's Department of Health, and Department of MHMR which assists those with developmental challenges like my son's - we need her help to resolve a problem we have encountered in "the system"
  • call and make a payment on special pharmaceutical drugs that are delivered to our home monthly
  • call a friend of mine whom I've been neglecting to call, being sidetracked with life's challenges
  • spend time cleaning at least one room of this house
  • finish folding the laundry that came out of the dryer yesterday
  • call a repairman for the electrical problem that we are having
  • call a repairman for the appliance problem that we are having
  • plot the appointment dates onto the family calendar - includes MY appointments as well as our son's appointments. I want to see where we can fit in our next trip to see our grandchildren in TX!
  • call to cancel the appointment made "automatically" by the medical center's clinic, and reiterate, once again, that we cannot attend appointments on Wednesdays
  • pick up the refills of prescription drugs and sort them into several containers that are dated and divided by time of day - so that in our haste we do not forget a dose of one of my son's required medications
  • call a brother who is having disturbing vision problems
  • pick up my young adult son and come home, an adventure of about an hour and a half
  • work a few minutes on the project of getting the filed papers in our home organized - steadily making progress!
  • do afternoon skin care routine for our young adult son, and other such required things
  • okay, and brush my teeth, take MY vitamins, EAT something, 30-walk on treadmill, and 15 minutes outside for "fresh" air
  • oh! THINK OF SOMETHING FOR SUPPER, and go ASAP to purchase the ingredients that I can't find in the pantry

That's quite a list, and it's not everything - since I won't be writing here about a lot of what we do for our son .

I cannot face days like these or any day, alone. I must go now and prepare myself for the day, by reading passages in the Bible and by talking personally with the Lord in prayer. It would be foolish to start any other way!


"And whatever you do, whether in word or deed,
do it all in the name of the Lord Jesus,
giving thanks to God the Father through him."

Colossians 3:17 NIV

Thursday, January 22

Change of plans...

Once again, we had to change our plans for the day...

Our son David had a seizure this morning as I helped him get dressed for his day. His seizures are pretty vigorous and take a lot out of him. So it's underrstandable that he requires sleep after them.

Anyway, we had a different day than what we expected. I had a day of errands planned, which had to be postponed; and David's plans had to be changed also. Typically, David attends a Day Hab Program every weekday... but not today. Today David spent his time spent resting and sleeping.

I filled my day with things that I would have done while at home in the evenings. My errands will get done another day. One thing we definitely have learned in dealing with our son's epilepsy is to be flexible... we always have a "Plan B".

On Thursday's I typically post a note to the blog called my Thankful List.
This Thursday, I am only adding one item to my list... there'll be more next week.

This week, I'm truly thankful for David's day habilitation program.
The program David attends on weekdays is UCP-Bham's Adult Program at LINCPoint. It's available for young adults with developmental disabilities in the Birmingham area. Our young adults with developmental disabilities are included in one or more of the various things available through UCP. It is an excellent program... with so much to offer!

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